But today is Cerebral Palsy Awareness Day. Last autumn my youngest son was diagnosed with cerebral palsy. Until that day, I only knew a little bit about C.P. Very little actually. I am still learning because like other spectrum and neurological disorders, there is not a one-size-fits all description. I only know about Bugaboo's diagnosis, his challenges and his strengths. I have seen on facebook some in the community saying, "Happy CP Day!" Although I understand their sentiment, for me that phrase feels awkward. Instead today, I celebrate Bug, not just what he has overcome and accomplished but who he is.
I celebrate the fact that Bug is getting better at his pincer grasp... someday soon he will master silverware and small pegged puzzles. I celebrate how he "ran" around the backyard this weekend in the spring weather. I celebrate his ability to use the stairs, with someone walking near him for safety and support. I celebrate his love for music and the ability to sing lines to various songs. I celebrate that he is kind, never getting mad if someone takes his toy or leaves him out. I celebrate his laugh, one of my favorite sounds in the world. I celebrate his amazing memory which displays itself at the most interesting times. I celebrate how he prays every night by listing the names of family, friends, and teachers, and even the occasional fictional character.
|(photo by Sarah Bottarel Photography)|
I say all of this on Awareness Day to hopefully make our friends and family and strangers on the internet aware. I am not a super mom because I have a child with special needs. While I believe in the sovereignty of God, I don't believe I am any more qualified to be on this CP journey with Bug than anyone else. I am qualified to be his mom just the same way I am qualified to be Bubby's mom, just the same way those of you who have children are qualified to be their parents. As a person of faith, I am qualified to handle this journey not in my own strength, but in the strength and power of Jesus Christ.
So on CP Awareness Day I celebrate the graciousness of God, Who gave us Bugaboo and Who leads us on this journey. I celebrate the strengthening of our faith, the nearness of the Holy Spirit when I most need Him, and the promise that He has a plan for our lives.